About the Project

The Survivorship Portal shares high quality genomic, clinical, and patient-reported data from survivors of pediatric cancer. To accelerate the rate of discovery in survivorship research we have developed this SJLIFE Survivorship Portal, a data-sharing platform for genomic and clinical data from the St. Jude Lifetime Cohort hosted on the St. Jude Cloud. The Portal features the Clinical Dictionary Browser, GenomePaint, a genetic variant browser, for browsing, visualizing and analyzing clinical and genetic data integratively. Additionally, the Survivorship Portal will serve as a site for an expanding portfolio of risk-prediction tools developed using the SJLIFE cohort, including the recently developed Cumulative Burden Risk-Prediction Tool.

Beta Release

This initial version of the portal is read-only but future updates will allow authenticated users to create customized downloading of source data. For more information or help, please contact us.

Projects

About the Data

The SJLIFE Study cohort was established in 2007 to address knowledge deficits about the health of 5-year survivors of cancer diagnosed during childhood and adolescence and treated at St. Jude Children’s Research Hospital (https://sjlife.stjude.org/). As part of the study, detailed demographic, diagnostic, and treatment are available for all participants. Additional detailed follow-up and clinically assessed outcomes are available for all patients who completed an on campus visit. Whole-genome sequence (30x) has been completed on the initial 3006 participants and serve as the population available on the initial version of the St. Jude Survivorship Portal.

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